Presentation and Recordings from Deafblindness: population, definition and identification

This webinar looked at deafblindness as a unique disability. The field of deafblindness were located historically from within the Nordic perspective, and its development within this framework were explored. The status of current practice, its challenges and those of the future were discussed.

 

Recordings and presentation from 8th and 9th June 2021

  • Anne Nafstad

    Anne is a psychologist specialised in congenital deafblindness and communication. She has worked in the field of deafblindness since 1982, with a special focus on the identification of congenital deafblindness. She has contributed to staff training and higher education in the Nordic countries and internationally through collaboration with the Nordic Welfare Centre (NVC), the University of Groningen in the Netherlands, and University of South East Norway (USN)  She is currently employed at the Unit for Dual Visual and Hearing loss and Deafblindness at Statped, Oslo. She is also a part time lecturer at University of South East Norway (USN).

    Else Marie Svingen

    Else Marie Svingen is a Special Educator reacently retired from the field of dual sensory impairment and Deafblindness where she has worked since the1980s. She is a former Head of the unit at Statped in Oslo where she contributed significantly to the fields of acquired and congenital deafblindness through her research, teaching, rehabilitation work, professional training and management. Her research work focused on the quality of service provision for elderly people with dual sensory loss, in close collaboration with Kolbein Lyng.

  • Britta Nilsson download presentation(pdf)
    Arvid Heiberg download presentation (pdf)

    Britta Nilsson

    Britta Nilsson is a Psychologist. She is an experienced academic in the field of rare disorders through her former position as Director at the Frambu Resource Centre for Rare Disorders. As a researcher at Sintef she has been engaged in studies on Augmentative and Alternative Communication (AAC).

    She is currently head of the The National Interdisciplinary Team for Identification and Diagnosis (NTT) in Norway.

    Arvid Heiberg

    Is a Norwegian physician and professor of medicine, best known for studies in social medicine, genetics and guidance of families living with hereditary conditions. He became Norway’s first full-time expert in medical genetics on the Oslo Health Council. From 2002, Arvid has been a Professor II at the University of Bergen. He is a Team member of The National Interdisciplinary Team for Identification and Diagnosis (NTT) in Norway.

     

  • Download presentation

    Kolbein Lyng

    Kolbein Lyng, psychologist, Mag. art./Phd. Retired professor of Health Sciences. He collaborated with Else Marie Svingen to develop a screening tool for the identification of severe dual sensory loss in old age (SDSL).
    Kolbein Lyng also lead a project on aging and autism at the Autism Unit at the University of Oslo.

  • Download presentation (pdf)

    Jesper Dammeyer

    Jesper Dammeyer (Phd. Doctor Med.) has researched deafblindness from various perspectives including prevalence, etiology, communication, tactile language, and mental health. He is based at the Department of Psychology, University of Copenhagen.

  • Claes Möller

    Claes Möller MD, PhD, is an Otolaryngologist (ENT) and Professor of Audiology and Disability Science at Örebro University and the Audiological Research Centre, Örebro University Hospital. Professor Möller’s research encompasses genetics, otolaryngology, otoneurology, pediatrics and audiology.

    His recent research focuses on interdisciplinary, bio-psycho-social approaches to deafblindness within the Swedish Institute for Disability Research at Örebro University.

    Marleen Janssen

    Helena Johanna Maria (Marleen) Janssen is Professor of Orthopedagogics at the University of Groningen. She is the first professor in the world to specifically focus on communicating with early acquired and congenital deafblind people.
    Marleen is the director of the University of Groningen Research Institute for Deafblindness that focuses on people with deafblindness and other communication disabilities. She holds a PhD from the Radboud University Nijmegen where she completed her thesis on harmonious interactions with Deafblind persons.

    Jude Nicholas

    Jude Nicholas (PhD) is a licensed clinical neuropsychologist and is currently employed by Statped and Haukeland University Hospital in Bergen, Norway. Nicholas has 25 years of clinical and research experience working with children and adults with sensory impairment.

    His current research focuses in particular on tactile cognition.

  • Recognizing Deafblindness as a unique disability: From the perspective of the practical or scientific professional field in each country.

    Henriette Hermann Olesen will discuss the theme of the day in a Danish context.Download presentation (pdf)

    Henriette Hermann Olesen

    Henriette Hermann Olesen is a Special Educator with long experience in the field of deafblindness, and congenital deafblindness. She has worked with training consultant educational staff members and advising parents. She is a former employee of the Nordic Welfare Center and is currently the Head of Department for special advisors working with congenital deafblindness in Denmark. She is Vice President of Deafblind International and has contributed to the work of revising the Nordic Definition of Deafblindness. Her next project will be participating in the establishment of the Nordic guidelines for identification.

    Anne Nafstad

    Anne is a psychologist specialised in congenital deafblindness and communication. She has worked in the field of deafblindness since 1982, with a special focus on the identification of congenital deafblindness. She has contributed to staff training and higher education in the Nordic countries and internationally through collaboration with the Nordic Welfare Centre (NVC), the University of Groningen in the Netherlands, and University of South East Norway (USN)  She is currently employed at the Unit for Dual Visual and Hearing loss and Deafblindness at Statped, Oslo. She is also a part time lecturer at University of South East Norway (USN).

     

  • Download presentation(pdf)

    Claes Möller

    Claes Möller MD, PhD, is an Otolaryngologist (ENT) and Professor of Audiology and Disability Science at Örebro University and the Audiological Research Centre, Örebro University Hospital. Professor Möller’s research encompasses genetics, otolaryngology, otoneurology, pediatrics and audiology.

    His recent research focuses on interdisciplinary, bio-psycho-social approaches to deafblindness within the Swedish Institute for Disability Research at Örebro University.

  • Download presentation (pdf)

    Marleen Janssen

    Helena Johanna Maria (Marleen) Janssen is Professor of Orthopedagogics at the University of Groningen. She is the first professor in the world to specifically focus on communicating with early acquired and congenital deafblind people.
    Marleen is the director of the University of Groningen Research Institute for Deafblindness that focuses on people with deafblindness and other communication disabilities. She holds a PhD from the Radboud University Nijmegen where she completed her thesis on harmonious interactions with Deafblind persons.

  • Based on all presentations these two days, from your perspective: What are our future challenges?

    Arvid Heiberg

    Is a Norwegian physician and professor of medicine, best known for studies in social medicine, genetics and guidance of families living with hereditary conditions. He became Norway’s first full-time expert in medical genetics on the Oslo Health Council. From 2002, Arvid has been a Professor II at the University of Bergen. He is a Team member of The National Interdisciplinary Team for Identification and Diagnosis (NTT) in Norway.

     

    Britta Nilsson

    Britta Nilsson is a Psychologist. She is an experienced academic in the field of rare disorders through her former position as Director at the Frambu Resource Centre for Rare Disorders. As a researcher at Sintef she has been engaged in studies on Augmentative and Alternative Communication (AAC).

    She is currently head of the The National Interdisciplinary Team for Identification and Diagnosis (NTT) in Norway.

    Claes Möller

    Claes Möller MD, PhD, is an Otolaryngologist (ENT) and Professor of Audiology and Disability Science at Örebro University and the Audiological Research Centre, Örebro University Hospital. Professor Möller’s research encompasses genetics, otolaryngology, otoneurology, pediatrics and audiology.

    His recent research focuses on interdisciplinary, bio-psycho-social approaches to deafblindness within the Swedish Institute for Disability Research at Örebro University.

    Henriette Hermann Olesen

    Henriette Hermann Olesen is a Special Educator with long experience in the field of deafblindness, and congenital deafblindness. She has worked with training consultant educational staff members and advising parents. She is a former employee of the Nordic Welfare Center and is currently the Head of Department for special advisors working with congenital deafblindness in Denmark. She is Vice President of Deafblind International and has contributed to the work of revising the Nordic Definition of Deafblindness. Her next project will be participating in the establishment of the Nordic guidelines for identification.

    Jesper Dammeyer

    Jesper Dammeyer (Phd. Doctor Med.) has researched deafblindness from various perspectives including prevalence, etiology, communication, tactile language, and mental health. He is based at the Department of Psychology, University of Copenhagen.

    Kolbein Lyng

    Kolbein Lyng, psychologist, Mag. art./Phd. Retired professor of Health Sciences. He collaborated with Else Marie Svingen to develop a screening tool for the identification of severe dual sensory loss in old age (SDSL).
    Kolbein Lyng also lead a project on aging and autism at the Autism Unit at the University of Oslo.

    Anne Nafstad

    Anne is a psychologist specialised in congenital deafblindness and communication. She has worked in the field of deafblindness since 1982, with a special focus on the identification of congenital deafblindness. She has contributed to staff training and higher education in the Nordic countries and internationally through collaboration with the Nordic Welfare Centre (NVC), the University of Groningen in the Netherlands, and University of South East Norway (USN)  She is currently employed at the Unit for Dual Visual and Hearing loss and Deafblindness at Statped, Oslo. She is also a part time lecturer at University of South East Norway (USN).

    Chair person

    Jude Nicholas

    Jude Nicholas (PhD) is a licensed clinical neuropsychologist and is currently employed by Statped and Haukeland University Hospital in Bergen, Norway. Nicholas has 25 years of clinical and research experience working with children and adults with sensory impairment.

    His current research focuses in particular on tactile cognition.